Other Information

If you have any questions at all, please feel free to contact me on clarissa@understandingbrca.co.uk
I am also more than happy to meet face-to-face to answer questions, offer support and to show the results from my breast reconstruction. However, I am not comfortable with emailing any photos.

Further information and support can be found at:

http://www.facingourrisk.org FORCE: an online support group
http://www.nothingpink.org Nothing Pink A Non-Profit Organization created to provide awareness, funding and support for women in need of BRCA Genetic Testing
http:www.macmillan.org.uk Cancer information and support
http:www.breastcancercare.org.uk/ Breast Cancer Care UK
https://breastadvocateapp.com/ - Co-created by leading specialists and patient advocates, Breast Advocate® is a free breast cancer app for Apple iPhone and Android that provides evidence-based information and recommendations, personalized for you, exactly when you need it.
https://prma-enhance.com/ - PRMA Rebuilding Lives After Breast Cancer - specialists in state-of-the art breast reconstruction procedures including DIEP flap, SIEA flap, GAP flap, TUG flap, LTP flap, fat grafting, direct-to-implant, nipple-sparing mastectomy, and lymphedema surgery
http:www.cancercare.org Cancer Care
http:www.lbbc.org Living Beyond Breast Cancer (LBBC). Emotional and practical support
http://brcaumbrella.ning.com/ Online support forum
https://www.brightpink.org/ - based in the US and is the only national non-profit organisation focused on prevention and early detection of breast and ovarian cancer in young women
http://www.menagainstbreastcancer.org Men Against Breast Cancer, for partners of those affected by breast cancer
http://www.youngsurvival.org An organisation for young women with breast cancer
http://www.pregnantwithbreastcancer.org/ An organisation for women diagnosed with cancer while pregnant
http://www.facebook.com/ Facebook: there are several BRCA peer support groups on this social networking site, including my own group, Understanding BRCA
http://www.targetovariancancer.org.uk - is the UK’s leading ovarian cancer charity which works to improve early diagnosis, fund life-saving research and provide much-needed support to women with ovarian cancer
http://www.ovacome.org.uk/ Ovacome: The Ovarian Cancer Support Network
http://www.ovarian.org.uk/ Ovarian Cancer Action
http://www.geneticalliance.org.uk/ Genetic Alliance UK
http://www.cruk.org.uk/ Cancer Research UK (CRUK)
http://www.nice.org.uk/National Institute for Health and Clinical Excellence (NICE guidelines for familial breast cancer)
http.//www.theeveappeal.org.uk For the better detection and improved treatment of all five gynaecological cancers
http.//www.peoplesbookprize.com - is a literary competition aimed at finding, supporting and promoting new and undiscovered works - decided exclusively by the public

I strongly recommend the Breast Reconstruction Awareness (BRA) Group that is held every couple of months at John Radcliffe Hospital, in Oxford. This group offers a presentation detailing the different types of reconstructive surgery and what to expect during, and after, this surgery. There is also the opportunity to speak with women who have already undergone breast reconstruction and to see their results. This group is, therefore, only open to women and female friends who attend to support. Details may be found at http://bragroup.weebly.com/

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